Maurice Dawson staff photo

Swihart selected for Memorial Dawson Internship

There was one thing that stood out above all to Carter Fifield about Drason Swihart – Swihart wasn’t afraid to admit he’d googled something. 

Swihart was one of the top applicants for the Maurice Dawson Jr. Technology Training Initiative, an internship created in honor of Maurice Dawson Jr., who passed away after working in the IT department at HDI for years. He was well-loved by the community, and shortly after his passing, HDI funded an internship program for people interested in exploring tech careers. 

“We really wanted to kind of present an opportunity to someone who was ready to get into the industry,” he said. “It was looking for an individual who either was or was not pursuing college and was looking to gain experience from the ground up.”

By the end of the application process, Fifield had narrowed a field of 64 applicants down to six top choices. Each of the top candidates showed incredible promise, but Fifield could only choose one. To help him make the final decision, Fifield wrote up a test – one designed to be a challenge.

“I released a very difficult technical interview, with the understanding that I did not expect them to be able to answer these questions. Just kind of a gauge of, ‘Hey, where are you at? How are you going to tackle this problem?’” Fifield said. “His answers to everything were kind of exactly what I was looking for.”

This included in places where Swihart explained that he did not initially know the answer to a question and so turned to outside resources for answers – something Fifield said stood out a lot. Swihart was the only applicant to mention searching for answers that way, and for Fifield, that spoke to an applicant willing to solve the problem through whatever means worked best. After that, the choice was easy – Swihart was the perfect fit. 

Swihart, meanwhile, mentioned that he was drawn to the position because he’s always been interested in technology. 

“I was always the tech guy in my house, like, even when I was a little 8-year-old,” he said. “I always had that interest.”

From there on out, Swihart said he’s been party to an incredible learning opportunity and an amazing starting point for what he hopes will be a fruitful career in IT. 

“All this has just been a learning process,” he said. “The first thing that I did once I was accepted into the position was learn some basic site coding…I’ve learned all about integrating everything that’s a part of a website…it’s really allowed me to, forward myself in that field.”

But the most invaluable thing to be successful in the field is something Swihart had when he came on board. 

“He has been extremely excited to learn and has a lot of enthusiasm towards everything that we’ve done so far,” Fifield said. “That, to me, is the most valuable kind of skill to have in this industry is, ‘Hey, I might not know everything right now, but I’m willing to learn it. I’m willing to do what I need to get that done.’”

2024 Summer Camp Group Photo in front of the Library

Summer Leadership Experience 2024

Multiple speakers, a banquet dinner, even a magic show – campers at HDI’s Summer Leadership Experience Camp were busy – but they learned a lot.
The Human Development Institute’s Summer Leadership Experience Camp is a program that is held for several days on the University of Kentucky’s campus that, this year, started on July 16 and continued until July 20. It’s open to Kentucky high school upper class students with disabilities who are figuring out what they want to do after high school. The camp is designed to offer them helpful information on multiple options for the next chapter in their lives, as well as tools to thrive wherever it might take them. Sessions cover topics from the many options for post-secondary education to how to access academic accommodations to lessons on self-advocacy.
According to Teresa Belluscio, Camp Director, this is a rare opportunity for young Kentuckians.
“There aren’t any or very few of these in the state of Kentucky,” Belluscio said. “This is a unique opportunity that is open to all high school students across Kentucky with disabilities.”
This year, there were multiple changes to the camp’s structure – it began a day earlier than it has in previous years, allowing for additional activities and programming as well as more time for students to catch their breath in between sessions. Belluscio thinks this was a positive change.
“I can tell from the campers that they were more relaxed. Campers had a little more time to talk in between sessions, so I felt like they were getting to know each other better and interacting more with the staff,” she said. “We didn’t feel rushed trying to get from one place to another, start the next session or the next activity.”
Camp will be held again in July 2025. For more information, visit https://oldhdi.hdiuky.net/project/summer-leadership-experience-camp

Caroline Gooden Staff Photo

Dr. Gooden’s work to Continue

Caroline Gooden may have retired, but that doesn’t mean her work is finished. 

She will continue to coordinate a grant on a part-time basis to teach graduate students how to work with young children who were born substance-exposed. 

It’s par for the course for Gooden, who started by majoring in psychology in Madison, New Jersey as a way of entering the education field through the back door where she started working with young children with a variety of disabilities.

“I love working with kids, and especially like working with kids with disabilities,” she said. “I did my master’s at UK, early childhood special ed, and didn’t look back.”

Gooden has worked with HDI in a variety of roles since 2005, from helping develop the way the state measures progress for children with disabilities from birth to five years, to advising states on special education regulations for children and their families, leading KY’s Leadership Education in Neurodevelopmental and other Disabilities (LEND) program and coordinating the Neonatal Abstinence Syndrome Training for Interdisciplinary Professions  (NASTIPS) project. Often, Gooden said the work she did with children, families, and providers was sobering and powerful. 

“Through NASTIPS, we get to look at what’s best for children in terms of their development and how to help families who are in recovery,” she said. “It’s very comprehensive and touches a lot of different systems.”

Gooden said that this recent project is some of the favorite work she’d done through HDI and the College of Education – focusing on services to babies with Neonatal Abstinence Syndrome. 

“I like all things early childhood, special ed,” she said. “Anything related to that area I love.”

The difficulty in picking a real favorite though underlines something Gooden really enjoyed about working with HDI. 

“I think one of the best things about HDI is that I’ve been able to work on a lot of projects in different areas related to disability,” she said. “It’s never dull at HDI.”

She’s also really loved how focused on relationships her work at HDI has been.  

“I would say that what I’ve enjoyed the most is working with the people at HDI and across the state and nation,” she said. “Building relationships is something I love to do, getting to know different people, and getting to know their strengths and their needs.”

Even though she’ll still be working at UK part-time, Gooden is excited to get into her retirement. 

“I want to spend more time with family and friends and more time in the woods – hiking, swimming, boating, and relaxing,” she said. 

Arline Wilson Staff Photo

Thank you, Arline Wilson

It all started simply because Arline Wilson was bored. 

“I was not working; I was taking a break trying to figure out what I wanted to do,” she said. “I thought I wanted to be a stay-at-home Mom, I got bored staying at home, so I started looking at jobs at UK and HDI had a position posted.” 

That choice led her to a 26-year career with HDI where she met colleagues she loves, did work she found meaningful and changed lives for the better. 

Wilson will soon be retiring from her position with the National Core Indicator project, ending a long, satisfying and fulfilling career with coworkers she said felt like family. 

“The first word that comes to my mind when I think of HDI is Family. I have had the pleasure to work with a lot of amazing people. We all work together to support and help each other with no judgement,” she said. “HDI family has been there for me through all my ups and downs in life. I’m proud to say that I’m part of the Big HDI family.”

In her work, Wilson interviewed consumers and families about their experiences with Kentucky’s waiver programs, which seek to promote independent living for Kentuckians. She’s done work investigating both the Kentucky Supports for Community Living Waiver and the Michelle P. Waiver. 

“The data we collect helps improves lives of Individuals that are receiving services,” she said. 

Throughout her career, she’s worn a few different hats as well, a lot of which have led to achievements she takes a lot of pride in. She specifically cites being the Lead Trainer for the Kentucky National Core Indicator project, serving as a member of the UK Staff Senate, and being selected for the UK Advance program as achievements she takes pride in. But one of her proudest achievements from her job has to do with how the expertise she gained let her help a personal friend. 

“The most rewarding would be that I helped with the transition of a friend that was at Oakwood a state facility move out into the community,” she said. “Theres no greater feeling than knowing you helped change someone’s life for the better.”

Now that she’s retiring, Wilson is trying to avoid making too many concrete plans, but she does know what she wants to be her biggest priority. 

“We all make big plans when we retire, but then life throws you a curve ball when you least expect it. I’m going to do what’s most important to me and that is spending time with my family and making lots of memories and living each day to the fullest,” she said. “Keith and I do plan on doing some travel and along the way we are taking the time to stop and smell the roses.”

chelsea gibbs and dr. rachel womack standing next to each other holding hands

Navigating Identity: Chelsea Gibbs and Dr. Rachel Womack on the Intersection of Disability and Queerness

Chelsea Gibbs has only recently started thinking of disability as part of her identity.

“I’m a caregiver for a young lady with an intellectual disability, and she lives with us half the time, and she is struggling with the concept of her having a disability as well,” Gibbs said. “She’s afraid of the word, so we’ve been very pro disability pride, look at all these cool people who do this.”

As she considered this, Gibbs thought about her own history—her diagnoses of OCD, generalized anxiety disorder and depression, as well as a few recently diagnosed chronic illnesses. She hadn’t always considered those diagnoses as disabilities, but upon further reflection, it clicked into place in a way it hadn’t before. She and her wife, Dr. Rachel Womack, who serves as HDI’s Training Director, have had a lot of recent conversations about the intersectionality of disability and queer identities and how people process those identities. 

“I’ve actually talked to a lot of people who had a similar experience to Chelsea where maybe they came out as queer in middle school or high school,” Womack said. “Then they’re 20, 30 years old and they’re getting a late-in-life autism diagnosis or a diagnosis of a chronic illness or they’ve acquired a disability… It’s important to think about how the experience of embracing one part of that identity can impact your experience of embracing the other.”

Multiple studies have shown people with disabilities are more likely to identify as queer. Little research has been done on this connection. Womack has been one of the few researchers to explore this oft-ignored intersection of identities, but she says there are still a lot of unanswered questions that Womack and Gibbs hope are one day answered or explored. 

In the meantime, Gibbs notes that living with an intersectional identity can be a complicated experience. 

“You have to continually do some deep self-reflection and how you identify is forever changing,” she said. “Who am I? Who are my people? Where am I safe? Am I normal? Who are my friends?”

Womack added just because two groups face marginalization, even if they’re similar forms of marginalization, that doesn’t mean those two groups will be free of negativity towards one another. 

“I think some of us have an idea that, [when] going to interact with another marginalized group of people, they probably get it. But that’s not always the case,” Womack said. “There’s certainly some ableism in queer spaces and I think there’s some homophobia and compulsory heterosexuality and things like that in disabled spaces too.” 

No matter how complex the identity, though, Womack said it’s simple to be supportive—not just of these particular groups, but for everyone with a marginalized identity. 

“Allow them to be fully who they are, however they would like to present that to you,” she said. “That’s everything from if they would like you to use certain pronouns, if they have a chosen name that’s different from their birth name, if they prefer identity-first versus person-first language. It’s having respect for things like that and having respect for those preferences and for those needs, we’re creating safer spaces for people.”

It can also be challenging to deal with situations where people are hostile to some identities, something both Womack and Gibbs have had to deal with during their careers. Womack has a background in social work and Gibbs works as a music therapist. When they encounter hostility due to their identities in those roles, they both agree there is a time and place for advocacy. When they are at work, the client comes first. 

Both also feel there are amazing things happening for both the queer community and the disability community, noting meteoric shifts in a relatively short time.  

“Just look back ten years ago. [Both] the disability rights movement and the queer movement were in such different place[s]. You couldn’t even get married,” Gibbs said. With those shifts in culture, comes a younger generation that’s more open-minded and accepting. 

While there are still a lot of questions about the intersectionality between the disabled and queer experiences, Womack is just one of the researchers ensuring they will have answers.

“There will be [answers],” she said. “Just give me time.”