HDITrex – Page 30

Lisa Dunkley accepting the award from the Burberrys.

Lisa Dunkley Named Winner of the 2017 Paul Kevin Burberry Award

Posted on June 28, 2017 | by HDITrex

On June 16, Lisa Dunkley was named by the University of Kentucky’s Human Development Institute (HDI) as the winner of the prestigious 2017 Paul Kevin Burberry Award.

Lisa recently completed the Graduate Certificate in Developmental Disabilities program at the Human Development Institute (HDI) and is a doctoral student in Rehabilitation Counseling at the University of Kentucky. She currently has a Research Assistantship at HDI and has demonstrated a strong commitment to people with disabilities through an innovative HDI leadership project called Project Teach One Reach All (TORA), with the aim to promote disability awareness and inclusion of students living in residence halls on the UK campus. Continue reading →

Updated “Understanding a Down Syndrome Diagnosis” book Available Now

Posted on June 22, 2017 | by HDITrex

The nationally recommended book for new and expectant parents learning about Down syndrome, Understanding a Down Syndrome Diagnosis, from the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute, has been recently updated with unprecedented collaboration from leading experts across the nation to improve the diagnosis experience for families. Continue reading →

Summer Leadership Training Camp 2017

Posted on May 17, 2017 | by HDITrex

The Summer Leadership Experience is a wonderful opportunity for high school juniors and seniors with mild to moderate disabilities to get a glimpse of the college experience for a week this summer. This program is for students who want to transition to higher education. The Summer Leadership Experience is a day camp that will begin at 9 am on Monday, July 17th and will run through Friday, July 21st. Continue reading →

Student Scholarships: Disability Policy Seminar

Posted on May 9, 2017 | by HDITrex

Whittney Darnell and Rongxiu Wu, doctoral students in the University of Kentucky Human Development Institute (HDI) Graduate Certificate program in Developmental Disabilities, recently received HDI Student Scholarships to attend the Disability Policy Seminar in Washington, D.C.

The Disability Policy Seminar is an annual conference put on in collaboration by multiple national disability organizations including the Association for University Centers on Disabilities (AUCD). The conference focuses on educating participants about policy issues affecting people with intellectual and developmental disabilities. Continue reading →

Research Brief Spring 2017

Posted on April 13, 2017 | by HDITrex

Having a Son or Daughter with Jacobsen Syndrome/11q Deletion Syndrome: Perspectives of Parents

by Stephanie Meredith, Anthony Lobianco & Harold Kleinert

Jacobsen syndrome (JS) is a rare genetic condition that often causes intellectual disabilities and health issues and has recently been added to various cell-free DNA prenatal screening tests. This condition often includes multiple physical features, a blood disorder, serious congenital heart defects in about 56% of patients, and a range of intellectual disabilities (ID). Individuals may also experience mild to moderate impairment in expressive language, vision problems, digestive issues; and common infections of the upper respiratory system [Grossfeld, 2004]. However, because JS is relatively rare, psychosocial research has never been performed on this population. Correspondingly, a patient education resource about this condition has not yet been published that reflects “the medical and psychosocial implications of the diagnosis” identified as a priority in the ACMG guidelines when providing information to prospective parents learning about screening results.

Continue reading →